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DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.
DEBRA was founded in 1978 by Phyllis Hilton whose daughter Debra had EB – the charity was the world’s first EB patient support group.
They have a vision of a world where no one suffers from the painful genetic skin blistering condition, EB. They fund pioneering research to find effective treatments and, ultimately, a cure for EB. They provide care and support to improve the quality of life for individuals and families living with EB.