Mrs Felicity Dahl, Roald Dahl's widow, founded the charity shortly after Roald's death and during the past 19 years we have supported many thousands of children and young people in the UK living with serious haematological and neurological conditions.
We began in 1991 by creating the first ever Paediatric Epilepsy Nurse Specialist post, at Liverpool's Alder Hey Children's Hospital. Since then we have created an additional 45 Roald Dahl Specialist Paediatric Nursing posts in hospitals and charities throughout the UK, caring for young patients with Acquired Brain Injury, Epilepsy or Blood Disorders.
There remains a significant shortage in the UK of specialist nursing and support for children living with these serious medical conditions, and Roald Dahl's Marvellous Children's Charity continues to work to meet the growing need. As well as providing nurses, and working with partner organisations to provide services and support workers, we also provide direct help to families facing financial hardship when caring for a seriously ill child.
The charity is led by a Board of Trustees including Mrs Dahl (Chair of the board until March 2011) and has a small staff team based in Great Missenden - where Roald Dahl wrote many of his best loved stories. The trustees and staff are assisted by an Advisory Board which includes leading doctors and nurses in the medical conditions we prioritise.